Register Now

Muscular Dystrophy Patient Registry

We at Ayushkama Foundation are aiming to develop Indian registry for Muscular Dystrophy patients. This patient registry collects information about patients who are affected by any form of Muscular Dystrophy

We are trying to fill the gap in information about individuals who are affected by a specific condition. Since In rare disease, they play an important role in the therapy development pathway.

    If you are filling out this form on behalf of a someone else, enter their name here. If you are the registrant, enter your own name.
    Providing a contact phone number is strongly encouraged in case we cannot reach you by e-mail.
    If you are being seen by a neurologist for your muscular dystrophy, please provide their full name and institutional affiliation (or the name of the hospital or clinic where you see your doctor). Example: Dr. Vishnu VY, AIIMS, New Delhi.
    Genetic reports will help us prepare a better registry and a confirmatory database for future therapy developments.